We Believe Elijah Has a Future Worth Fighting For

Elijah was diagnosed with a rare condition called NKH

but we refuse to let that define his life.

WHO ELIJAH IS

Elijah is more than a diagnosis.

He’s strong. He’s joyful. He’s fought battles most people will never see and he keeps going.

From the very beginning, we were told what his life might not be.

But we’ve chosen to believe in what it can be.

Every year since his first birthday, I’ve dressed Elijah as a profession.

Not because I know what his future holds…
But because I believe one day, he’ll get to choose.

🧬 WHAT HE’S FACING

Elijah has a rare genetic condition called non-ketotic hyperglycinemia (NKH).

It causes seizures, affects his development and requires ongoing care, strict nutrition, and constant support.

Many of the things he needs are not covered by insurance or are denied entirely.

But they are not optional.

They are essential for his quality of life.

💔 WHAT WE NEED RIGHT NOW

We are currently facing:

  • $1,000/month in out-of-pocket functional medicines and holistic alternatives through Dr. Ben Bowers at Docere Life Center

  • A specialized medical chair (insurance denied—reapplication months away)

  • Therapy-based summer camps ($100/day)

  • Adaptive equipment so we can experience life together → Hiking equipment $2,500

And beyond that…

We dream of one day giving Elijah a home designed specifically for his needs.

🔥 THE FIRE FIGHTER STORY

This year… Elijah is a firefighter.

Because every day, he fights.

And because we believe his life is worth fighting for too.

We’re partnering with our local fire department to bring this moment to life…

not just to celebrate him, but to bring awareness to his journey.


🙏 HOW YOU CAN HELP

If you feel led to support Elijah, every dollar goes directly toward his care, equipment, and experiences.

No gift is too small.

Make an Impact Today.

Make an Impact Today.

  • Give $25 → Helps cover daily care needs

  • Give $50 → Supports therapy + nutrition

  • Give $100 → Contributes to essential equipment

  • Custom Amount

Become part of Elijah’s ongoing care:

  • $25/month

  • $50/month

  • $100/month

Your support helps cover his consistent medical needs.

  • If you can’t give, sharing Elijah’s story means everything.

Follow our journey.

 

Contact Us

We would love to connect with families like ours or answer any questions you might have. We are also open to collaborations! Alone we are rare but together we are strong.